The Patient: Patient-Centered Outcomes Research, Springer & International Academy of Health Preference Research

Corrections

All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:patien. See general information about how to correct material in RePEc.

For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .

Content

January 2026, Volume 19, Issue 1

5-20 Using a Timeline Activity in Virtual Concept Elicitation Interviews with Youth: Methods and Lessons Learned from an Interpretive Descriptive Study to Develop a Patient-Reported Outcome Measure (GENDER-Q Youth)
by Shelby L. Kennedy & Susan M. Jack & Natasha Johnson & Jennifer Couturier & Charlene Rae & Anne F. Klassen
21-49 Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review
by Signe Nissen & Anne Wettergren Karlsson & Birgitte Nørgaard
51-68 A Systematic Literature Review of Preference Studies in Migraine Treatments
by Divya Mohan & Harrison Clarke & Natasha Ramachandran & Jaein Seo
69-82 A Qualitative Study on Patient Experience with Signs, Symptoms, and Daily Impacts of Immune Thrombocytopenia
by Waleed Ghanima & Nichola Cooper & Sylvie Bozzi & Ahmed Daak & Imene Gouia & Matias Cordoba & Javier Barrio & Michael Kostikas & Owen Cooper & Howard Liebman
83-92 Subcutaneous Infusion of Benzathine Penicillin G Is Acceptable and Preferred Over Intramuscular Injections for Syphilis in Western Australian Sexual Health Clinic Attendees: A Mixed Methods Sub-study
by Shakayla L. Walley & Jane Oliver & Stephanie L. Enkel & Alice Kupara & Simon Swallow & Joseph Cotter & Gerard F. Hoyne & Thel K. Hla & Laurens Manning
93-101 Patient-Reported Side Effect Bother: Understanding the Value of the Baseline Report
by Jessica Roydhouse & Monique Breslin & Anne Zola & Ethan Basch & Melanie Calvert & David Cella & Mary Lou Smith & Gita Thanarajasingam & John Devin Peipert
103-111 Do Patients Think it’s Worth Waiting for a Kidney? Evidence from a Discrete-Choice Experiment
by Ching-Heng Wu & Shelby D Reed & Jui-Chen Yang & Sanjay Mehrotra & Lisa McElroy & Juan Marcos Gonzalez
113-120 Practical considerations towards the collection of patient reported outcome data among hematopoietic cell transplant recipients
by Gemma Pugh & Christina Yiallouridou & Dawn Hart & Rachel Miller & Robert Danby
121-129 Which Factors Influence Decisions to Withdraw from Eculizumab: A Qualitative Study of Patients Diagnosed with aHUS
by Jan Lecouturier & Neil Sheerin
131-144 Attribute Development and Level Selection for a Discrete Choice Experiment to Elicit Care Preferences of Older Adults and Informal Caregivers Aging in Place in The Netherlands
by Isabelle Vullings & Luis Pilli & Marie-Julie C. H. Russchen & Nanon H. M. Labrie & Joffre Swait & Özgül Uysal-Bozkir & Joost Wammes & Janet L. MacNeil Vroomen
145-160 Exploring the Impact of a Context-Adapted Decision Aid and Online Training About Shared Decision Making About Goals of Care with Elderly Patients in the Intensive Care Unit: A Mixed-Methods Study
by Ariane Plaisance & Julien Turgeon & Lucas Gomes Souza & France Légaré & Stéphane Turcotte & Nathalie Germain & Tommy Jean & Maude Dionne & Félix Antoine Fortier & Patrick Plante & Diane Tapp & Véronique Gélinas & Emmanuelle Bélanger & Mark H. Ebell & Christian Chabot & Tom H. van de Belt & Alexis F. Turgeon & Patrick M. Archambault
161-161 Correction: Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment
by Pakhi Sharma & Sanjeewa Kularatna & Bridget Abell & Steven M. McPhail & Sameera Senanayake

November 2025, Volume 18, Issue 6

585-596 Developing Tools for the Efficient Design of Health Preference Studies: Taxonomy of Attributes and Prototype of an Attribute Library
by Norah L. Crossnohere & Jonah Golder & Esther W. Bekker-Grob & Juan Marcos Gonzalez Sepulveda & Kert Gunasekaran & Alissa Hanna & Bennett Levitan & Barry Liden & Deborah Marshall & Christine Poulos & Shelby D. Reed & Ellen M. Janssen
597-608 Prioritizing Participant and Research Team Emotional Safety During Data Generation and Analysis in Qualitative Patient-Reported Outcome Measure Research: Development of a Framework Informed by the GENDER-Q Youth Study
by Shelby L. Kennedy & Susan M. Jack & Natasha Johnson & Jennifer Couturier & Charlene Rae & Anne F. Klassen
609-621 Cognitive Interviews: Recommendations for Best Practices in Clinical Outcome Assessment (COA) Measure Development and Validation
by Keith A. Meadows & Nur Ferrante & Tomislav Geršić
623-644 Measuring Fatigue in Multiple Sclerosis: A Rapid Review
by Tergel Namsrai & Anne Parkinson & Richard Burns & Geoffrey Herkes & Mark Elisha & Katrina Chisholm & Janet Drew & Vanessa Fanning & Anne Brüstle & Hanna Suominen & Nicolas Cherbuin & Jane Desborough
645-660 Preferences for Telephone Cancer Information and Support in People with Cancer and Carers: Attribute and Level Selection for a Discrete Choice Experiment
by Ann Livingstone & Lidia Engel & Victoria White & Daswin Silva & Jessica Bucholc & April Murphy & Elaine Cook & Cathrine Mihalopoulos & Liliana Orellana & Julie Ratcliffe & Danielle Spence & Nikki McCaffrey
661-671 Content Validity of the EQ-HWB in Caregivers of Children with Health Conditions
by Cate Bailey & Tessa Peasgood
673-686 Considering Clinical Implementation of Polygenic Scores in Hereditary Cancer Risk Assessment: Recipients’ Perspectives on Influencing Factors and Strategies
by Rebecca Purvis & Natalie Taylor & Paul James & Mary-Anne Young & Laura E. Forrest
687-697 Exit Interviews Examining Changes to Mood and Work/Productivity Impacts Related to Vasomotor Symptoms: Perspectives of Postmenopausal Women Receiving Elinzanetant in Phase III Clinical Trials
by Claudia Haberland & Melissa Barclay & Asha Lehane & Sophie Whyman & Adam Gater & Heidi Wikstrom & Christian Seitz & Nils Schoof & Andrew Trigg & Helena Bradley
699-712 Patient-Reported Meaningful Change in Symptoms and Impacts of Paroxysmal Nocturnal Hemoglobinuria (PNH) in Three Phase III Clinical Trials of Iptacopan
by Carlos DeCastro & Phillip Sheinberg & Bing Han & Susan Vallow & Georgina Bermann & Marion Dhalke & Rakesh Kumar & Gavin Dickie & Nina Galipeau & Roger Lamoureux & Kaelyn Rupinski & Caitlyn Lowe & Amber Nieves & Flore Sicre Fontbrune & Regis Peffault Latour
713-728 Exit Interviews to Understand Meaningful Change from the Patient Perspective in a Clinical Study of Dupilumab for the Treatment of Chronic Inducible Cold Urticaria
by Ella Brookes & Ufuk Coşkun & Christina O’Donnell & Efstathios Zikos & Renata Martincova & Jingdong Chao & Mohana Giruparajah & Beverly Romero
729-745 Patient and Caregiver Experiences of CAR T Cell Therapy for Blood Cancer in the UK: A Qualitative Study
by Christel McMullan & Melanie J. Calvert & Sarah E. Hughes & Lester Pyatt & Bernie Kern & Karen L. Shaw & Biruk Asfaw & Caroline Besley & Niamh Buckingham & Hayley Ellis & Caitlin Farrow & Maria Mazza & Rachel Miller & David Irvine & Ceri Jones & Emily John & Yasmin Sheikh & Gemma Pugh & Christina Yiallouridou & Olalekan Lee Aiyegbusi
747-761 Patient Preferences for Metastatic Colorectal Cancer Treatment: A Multi-method Approach Using Discrete Choice Experiments and Best–Worst Scaling
by Carina Oedingen & Karen V. MacDonald & Barry D. Stein & Gerald Batist & Winson Y. Cheung & Sharlene Gill & Benjamin A. Goldenberg & Yoo-Joung Ko & Deborah A. Marshall
763-772 Patients’ Needs and Preferences for Cardiac Pacemaker Implantation: A Qualitative Study on Disease and Medical Device Characteristics to Inform a Quantitative Preference Study
by Alice Vanneste & Peter Sinnaeve & Isabelle Huys & Tom Adriaenssens & Christophe Garweg
773-774 Correction: Patients’ Needs and Preferences for Cardiac Pacemaker Implantation: A Qualitative Study on Disease and Medical Device Characteristics to Inform a Quantitative Preference Study
by Alice Vanneste & Peter Sinnaeve & Isabelle Huys & Tom Adriaenssens & Christophe Garweg

September 2025, Volume 18, Issue 5

403-414 Seven Actions Towards Advancing Patient Authorship and Collaboration in Peer-Reviewed Publications
by Trishna Bharadia & Jan Geissler & Rosie Robson & Lucie Laštíková & Laura D. Porter & Grace Richmond & Ben Johnson & Louise Roch & Dikran Toroser
415-423 Putting the Choice in Choice Tasks: Incorporating Preference Elicitation Tasks in Health Preference Research
by Jennifer A. Whitty & Emily Lancsar & Richard Abreu Lourenco & Kirsten Howard & Elly A. Stolk
425-440 What Can Discrete-Choice Experiments Tell Us about Patient Preferences? An Introduction to Quantitative Analysis of Choice Data
by F. Reed Johnson & Wiktor Adamowicz & Catharina Groothuis-Oudshoorn
441-442 Correction: What Can Discrete‑Choice Experiments Tell Us about Patient Preferences? An Introduction to Quantitative Analysis of Choice Data
by F. Reed Johnson & Wiktor Adamowicz & Catharina Groothuis-Oudshoorn
443-459 Engaging Underserved Populations in Health Preference Research: Challenges and Strategies
by Paula Sinead Donnelly & Divya Mohan & Hannah Penton & Emily Wilson & Marco Boeri
461-480 A Systematic Review of Discrete Choice Experiments on Preferences for COVID-19 Vaccinations
by Eva-Lotta Hinzpeter & Nadja Kairies-Schwarz & Charlotte Beaudart & Jonathan Douxfils & Dweeti Nayak & Mickaël Hiligsmann
481-493 Incorporating Best-Worst Scaling (BWS) Questions into Focus Groups to Improve Understanding of Patient Preferences and Refine BWS Attributes
by Deborah A. Marshall & Karen V. MacDonald & Nitya Suryaprakash & Raza M. Mirza & Maida J. Sewitch & Geoffrey C. Nguyen
495-510 Preferences for the Use of Artificial Intelligence for Breast Cancer Screening in Australia: A Discrete Choice Experiment
by Maame Esi Woode & Udeni De Silva Perera & Chris Degeling & Yves Saint James Aquino & Nehmat Houssami & Stacy M. Carter & Gang Chen
511-521 Patients’ Experiences of Atopic Dermatitis and Nemolizumab Treatment: An In-Trial Interview Study Embedded in a Phase 3 Clinical Trial (ARCADIA)
by Jonathan I. Silverberg & Dina Filipenko & Carla Dias Barbosa & Danielle Rodriguez & Olivier Chambenoit & Katrin Jack & Christophe Piketty & Ram Subramanian & Jorge Puelles
523-537 Determining the Content Validity of the EQ-5D-5L, EQ-5D-Y-3L, and CHU9D Instruments for Assessing Generic Child and Adolescent Health-Related Quality of Life: A Qualitative Study
by Jill Carlton & Philip A. Powell & Andrew Kirkcaldy & Donna Rowen
539-561 What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents
by Debbie Braybrook & Lucy Coombes & Hannah M. Scott & Daney Harðardóttir & Anna Roach & Jemimah Bariuan & Clare Ellis-Smith & Julia Downing & Fliss E. M. Murtagh & Myra Bluebond-Langner & Lorna K. Fraser & Richard Harding & Katherine Bristowe

July 2025, Volume 18, Issue 4

291-302 How to Present a Decision Object in Health Preference Research: Attributes and Levels, the Decision Model, and the Descriptive Framework
by Axel C. Mühlbacher & Esther W. Bekker-Grob & Oliver Rivero-Arias & Bennett Levitan & Caroline Vass
303-315 An Overview of Data Collection in Health Preference Research
by Semra Ozdemir & Matthew Quaife & Ateesha F. Mohamed & Richard Norman
317-327 Exploring How Values of Colorectal Cancer Patients and their Caregivers Influence Treatment Decision-Making
by Raza M. Mirza & Sabrin Salim & Jennifer A. H. Bell & Mary Jane Esplen & Karen V. MacDonald & Barry D. Stein & Deborah A. Marshall
329-341 How do Design Characteristics Affect Respondent Engagement? Assessing Attribute Non-attendance in Discrete Choice Experiments Valuing the EQ-5D-5L
by Peiwen Jiang & Deborah Street & Richard Norman & Rosalie Viney & Mark Oppe & Brendan Mulhern
343-355 Elderly People’s Preferences for Different Organizational Models for Frailty Screening: A Discrete Choice Experiment
by Lucile Mulot & Fanny Monmousseau & Sophie Dubnitskiy-Robin & Maurine Diot & Pierre Marionnaud & Solène Brunet-Houdard & Bertrand Fougere
357-372 Discrete Choice Experiment Versus Best–Worst Scaling: An Empirical Comparison in Eliciting Young People’s Preferences for Web-Based Mental Health Interventions
by Thi Quynh Anh Ho & Lidia Engel & Long Khanh-Dao Le & Glenn Melvin & Jemimah Ride & Ha N. D. Le & Cathrine Mihalopoulos
373-390 Identifying and Managing Fraudulent Respondents in Online Stated Preferences Surveys: A Case Example from Best–Worst Scaling in Health Preferences Research
by Karen V. MacDonald & Geoffrey C. Nguyen & Maida J. Sewitch & Deborah A. Marshall
391-402 Co-designing Healthcare Interventions with Users: A Discrete Choice Experiment to Understand Young People’s Preferences for Sexual and Reproductive Health Services in Lusaka, Zambia
by Lawrence Mwenge & Matthew Quaife & Lucheka Sigande & Sian Floyd & Melvin Simuyaba & Mwelwa Phiri & Chisanga Mwansa & Mutale Kabumbu & Musonda Simwinga & Kwame Shanaube & Ab Schaap & Sarah Fidler & Richard Hayes & Helen Ayles & Bernadette Hensen & Peter Hangoma

May 2025, Volume 18, Issue 3

187-197 Stated-Preference Survey Design and Testing in Health Applications
by Deborah A. Marshall & Jorien Veldwijk & Ellen M. Janssen & Shelby D. Reed
199-209 Qualitative In-trial Interviews: Methods, Challenges, and Best Practice
by Nicola Williamson & Chloe Howse & Nicola Hodson & Julia Stein & Rob Arbuckle
211-223 Routine Quality-of-Life Measurement in Residential Aged Care: Staff, Resident, and Family Perspectives
by Andrew Simon Gilbert & Frances Batchelor & Nancy Devlin & Briony Dow & Brendan Mulhern & Rosalie Viney & Tessa Peasgood & Lidia Engel
225-236 Patient Experience of Treatment with Tirzepatide for Weight Management: Exit Interviews from SURMOUNT-4
by Chloe Carmichael & Irina Jouravskaya & Elizabeth Collins & Danielle Burns & Jiat Ling Poon & Helen Kitchen & Donna Mojdami & Madhumita Murphy & Nadia Ahmad & Chisom Kanu
237-247 Using Best–Worst Scaling Survey to Investigate the Relative Importance of Attributes Associated with Public Hospital Outpatient Appointments
by Tilley Pain & Amy Brown & Gail Kingston & Stephen Perks & Corey Patterson & Nerida Firth & Jessica Lester & Luke Sherwood & Sonja Brennan & Deborah Street
249-261 Content Validity Assessment of the Insomnia Daytime Symptoms and Impacts Questionnaire (IDSIQ) Among Adults with Insomnia and Nocturia
by Miriam Kimel & Leah Kleinman & Tobias Di Marco & Antonio Olivieri & Andrea Schulz & Katherine Kirk & Andrea Phillips Beyer
263-277 Unveiling Preferences in Closed Communities: Development of a Discrete Choice Experiment (DCE) Questionnaire to Elicit Ultra-Orthodox Women Preferences for Video Consultations in Primary Care
by Irit Chudner & Anat Drach-Zahavy & Batya Madjar & Leah Gelman & Sonia Habib
279-290 Getting Everyone on Board to Break the Cycle of Bacterial Vaginosis (BV) Recurrence: A Qualitative Study of Partner Treatment for BV
by Alicia J. King & Tiffany R. Phillips & Erica L. Plummer & Natasha Wild & Christopher K. Fairley & Eric P. F. Chow & Lenka A. Vodstrcil & Catriona S. Bradshaw

March 2025, Volume 18, Issue 2

97-100 Transferability of Preferences; for Better or ….?
by Jorien Veldwijk & Semra Ozdemir & Michael Bui & Juan Marcos Gonzalez & Catharina G. M. Groothuis-Oudshoorn & Brett Hauber & Tommi Tervonen
101-108 What Next for the Science of Patient Preference? Interoperability, Standardization, and Transferability
by Kevin Marsh & Juan Marcos Gonzalez Sepulveda & Conny Berlin & Bennett Levitan & Marco Boeri & Catharina G. M. Groothuis-Oudshoorn & Norah L. Crossnohere & Cecilia Jimenez-Moreno & Barry Liden & Isabelle Stoeckert & Jorien Veldwijk & Stephen Watt & Brett Hauber
109-114 Reporting of Patient and Public Involvement in Technology Appraisal and Assessment Reports: A Rapid Scoping Review
by Eugenie Evelynne Johnson & Cyril Onwuelazu Uteh & Emma Belilios & Fiona Pearson
115-129 Preferences of Cancer Survivors for Follow-Up Care: A Systematic Review of Discrete Choice Experiments
by Tongyu Zhang & Zhuobing Bai & Bingyan Zhao & Yu Chen & Chunmei Zhang
131-143 What Do People Want from an AI-Assisted Screening App for Sexually Transmitted Infection-Related Anogenital Lesions: A Discrete Choice Experiment
by Nyi Nyi Soe & Phyu Mon Latt & Alicia King & David Lee & Tiffany R. Phillips & Christopher K. Fairley & Lei Zhang & Jason J. Ong
145-160 Patients and Spine Surgeons’ Perspectives regarding Decision-Making and Outcomes in Lumbar Surgery: An Exploratory, Qualitative Study
by Ling Jie Cheng & Nan Luo & Le Ann Chen & Jing Ying Cheng & Gabriel Ka Po Liu & Wenru Wang & Hwee Weng Dennis Hey & Vivien Xi Wu
161-171 Measuring Patient Preferences to Inform Clinical Trial Design: An Example in Rheumatoid Arthritis
by Gillian R. Currie & Jan Storek & Karen V. MacDonald & Glen Hazlewood & Caylib Durand & John F. P. Bridges & Dianne Mosher & Deborah A. Marshall
173-185 Assessing Preferences of Patients with Chronic Spontaneous Urticaria for Injectable Treatment Profiles
by Ana Maria Giménez-Arnau & Maria-Magdalena Balp & Andrii Danyliv & Tonya Winders & James O’Donoghue & Jörn Kleebach & Samantha Morrison & Shaun Walsh & Maike Mueller & Daniela Lopez-Ortiz & Marcus Maurer & Jonathan A. Bernstein

January 2025, Volume 18, Issue 1

3-18 Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework
by Beyza Klein & Eleanor M. Perfetto & Elisabeth M. Oehrlein & Fay Weston & Trudie C. A. Lobban & Marc Boutin
19-33 Discrete Choice Experiments to Elicit Patient Preferences for the Treatment of Major Depressive Disorder: A Systematic Review
by Susan dosReis & Dafne Espinal Pena & Alexandra Fincannon & Emily F. Gorman & Alejandro Amill-Rosario
35-47 Validity and Responsiveness of EQ-5D in Asthma: A Systematic Review and Meta-analysis
by Ai-Ping Chua & Ling Jie Cheng & Zhi Yi Soh & Le Ann Chen & Nan Luo
49-63 Preferences for the Societal Impacts of a Pandemic when it Transitions into an Endemic: A Discrete Choice Experiment
by Niek Mouter & Tom Geijsen & Aylin Munyasya & Jose Ignacio Hernandez & Daniel Korthals & Marijn Stok & Ellen Uiters & Marijn Bruin
65-76 Evaluating Comprehensibility of 157 Patient-Reported Outcome Measures (PROMs) in the Nationwide Dutch Outcome-Based Healthcare Program: More Attention for Comprehensibility of PROMs is Needed
by Attie Tuinenburg & Domino Determann & Elise H. Quik & Esmee M. Willik & Geeske Hofstra & Joannes M. Hallegraeff & Ingrid Vriend & Lisanne Warmerdam & Hester E. Bommel & Gudule Boland & Martijn A. H. Oude Voshaar
77-87 Patient Preferences for First-Line Treatment of Locally Advanced or Metastatic Urothelial Carcinoma: An Application of Multidimensional Thresholding
by Andrea B. Apolo & Christine Michaels-Igbokwe & Nicholas I. Simon & David J. Benjamin & Mallory Farrar & Zsolt Hepp & Lisa Mucha & Sebastian Heidenreich & Katelyn Cutts & Nicolas Krucien & Natasha Ramachandran & John L. Gore
89-95 A Framework to Promote Implementation of Patient-Reported Outcomes in Institutions Caring for Vulnerable and Underserved Cancer Populations
by Anne L. R. Schuster & Norah L. Crossnohere & Eric Adjei Boakye & Rebekah Angove & Billie Baldwin & Esteban A. Barreto & Ronald C. Chen & Theresa W. Gillespie & Betty Hamilton & Nadine Jackson McCleary & Maimah Karmo & Tara Kaufmann & William Lee & Vikas Mehta & Larissa Meyer & Kriti Mittal & Leah Owens & Rachel Peterson & Andrea Pusic & Anne Marie Rainey & Angelique Richardson & Lauren Shapiro & Bethany Sibbitt & Cardinale Smith & Mary Vargo & Andrew Vickers & Michael Brundage & Claire Snyder

November 2024, Volume 17, Issue 6

603-617 The Role of Patient-Reported Outcomes to Measure Treatment Satisfaction in Drug Development
by Carolina Navas & Alexandra Palmer Minton & Ana Maria Rodriguez-Leboeuf
619-634 Stated Preferences of At-Risk Populations for the Treatment of Osteoporosis: A Systematic Review
by Eva-Lotta Hinzpeter & Lakshmi Nagendra & Nadja Kairies-Schwarz & Charlotte Beaudart & Mickaël Hiligsmann
635-644 The Performance of Kaizen Tasks Across Three Online Discrete Choice Experiment Surveys: An Evidence Synthesis
by Benjamin Matthew Craig & Maksat Jumamyradov & Oliver Rivero-Arias
645-662 Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment
by Pakhi Sharma & Sanjeewa Kularatna & Bridget Abell & Steven M. McPhail & Sameera Senanayake
663-672 Preferences of Recent Mums in Remote and Rural Areas for Type of Intrapartum Care: A Discrete Choice Experiment
by Luis E. Loría-Rebolledo & Hugo C. Woerden & Helen Bryers & Seda Erdem & Verity Watson
673-683 Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective
by Lidia Engel & Cate Bailey & Ekaterina Bogatyreva & Frances Batchelor & Nancy Devlin & Briony Dow & Andrew S. Gilbert & Brendan Mulhern & Rosalie Viney & Tessa Peasgood
685-696 Patients’ Preferences for Sphingosine-1-Phosphate Receptor Modulators in Multiple Sclerosis Based on Clinical Management Considerations: A Choice Experiment
by Alexander Keenan & Chiara Whichello & Hoa H. Le & David M. Kern & Gabriela S. Fernandez & Vicky Turner & Anup Das & Matthew Quaife & Amy Perrin Ross
697-710 Young People’s Barriers and Facilitators of Engagement with Web-Based Mental Health Interventions for Anxiety and Depression: A Qualitative Study
by Thi Quynh Anh Ho & Lidia Engel & Glenn Melvin & Long Khanh-Dao Le & Ha N. D. Le & Cathrine Mihalopoulos
711-728 15th Meeting of the International Academy of Health Preference Research
by Deborah Marshall

September 2024, Volume 17, Issue 5

July 2024, Volume 17, Issue 4

335-347 Adverse Event Reporting in Cancer Clinical Trials: Incorporating Patient-Reported Methods. A Systematic Scoping Review
by Minna Grahvendy & Bena Brown & Laurelie R. Wishart
349-362 Differences in Preferences for Drug Therapy Between Patients with Metastatic Versus Early-Stage Breast Cancer: A Systematic Literature Review
by Lilly Sophia Brandstetter & Steffi Jírů-Hillmann & Stefan Störk & Peter Ulrich Heuschmann & Achim Wöckel & Jens-Peter Reese
363-378 What Breast Cancer Screening Program do Rural Women Prefer? A Discrete Choice Experiment in Jiangsu, China
by Yanjun Sun & Yiping Wang & Huiying Zhang & Zhiqing Hu & Yuhao Ma & Yuan He
379-395 Studying How Patient Engagement Influences Research: A Mixed Methods Study
by Deborah A. Marshall & Nitya Suryaprakash & Danielle C. Lavallee & Tamara L. McCarron & Sandra Zelinsky & Karis L. Barker & Gail MacKean & Maria J. Santana & Paul Moayyedi & Stirling Bryan
397-406 A Novel Approach to Computing Preference Estimates for Different Treatment Pathways: An Application in Oncology
by Kathleen Beusterien & Oliver Will & Emuella Flood & Susan McCutcheon & deMauri S. Mackie & Stella Mokiou
407-419 Community Preferences for the Care of Older People at the End of Life: How Important is the Disease Context?
by Patricia Kenny & Deborah J. Street & Jane Hall & Meera R. Agar & Jane Phillips
421-439 Health-Related Quality-of-Life Impacts Associated with Transfusion-Dependent β-Thalassemia in the USA and UK: A Qualitative Assessment
by Jennifer Drahos & Adriana Boateng-Kuffour & Melanie Calvert & Laurice Levine & Neelam Dongha & Nanxin Li & Zahra Pakbaz & Farrukh Shah & Antony P. Martin
441-455 Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia
by Christel Hendrieckx & Sienna Russell-Green & Timothy Skinner & Ashley H. Ng & Chris Lee & Siobhan Barlow & Alan Davey & Caitlin Rogers & Elizabeth Holmes-Truscott & Jane Speight
457-469 Perceptions and Acceptance of a Prophylactic Vaccine for Human Immunodeficiency Virus (HIV): A Qualitative Study
by Natalie V. J. Aldhouse & Eric K. H. Chan & Tamara Al-zubeidi & Stephanie McKee & Valérie Oriol Mathieu & Antoine C. El khoury & Helen Kitchen
471-479 Exploring Consumers’ Motivations and Experiences of Engaging as Partners in Cancer Research
by Jamie L. Waterland & Cassandra Beer & Rowan Forbes Shepherd & Laura E. Forrest
481-481 Correction: Exploring Consumers’ Motivations and Experiences of Engaging as Partners in Cancer Research
by Jamie L. Waterland & Cassandra Beer & Rowan Forbes Shepherd & Laura E. Forrest

May 2024, Volume 17, Issue 3

215-217 The Limitations of EQ-5D as a Clinical Outcome Assessment Tool
by Ari Gnanasakthy & Carla Romano DeMuro
219-227 Key Insights into Developing Qualitative Concept Elicitation Work for Outcome Measures with Children and Young People
by Samantha Husbands & Paul Mark Mitchell & Joanna Coast
229-237 Using Patient Preferences in Health Technology Assessment: Evaluating Quality-Adjusted Survival Equivalents (QASE) for the Quantification of Non-health Benefits
by Kevin Marsh & Hannah Collacott & Jim Thomson & Jonathan Mauer & Stephen Watt & Koonal Shah & Brett Hauber & Louis Garrison & Mendwas Dzingina
239-249 A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature
by Caroline Shaw & Louise Longworth & Bryan Bennett & Louise McEntee-Richardson & James W. Shaw
251-251 Correction to: A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature
by Caroline Shaw & Louise Longworth & Bryan Bennett & Louise McEntee-Richardson & James W. Shaw
253-262 Quality of Life in Adults with Chronic Cough: A Mixed Methods Study Informing the Development of a Quantitative Patient Preference Study
by Theresa Coles & Molly McFatrich & Helen Ding & Nicole Lucas & Erin Daniell & Aparna Swaminathan & Jonathan Schelfhout & Reed Johnson
263-274 Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox
by Elisabeth M. Oehrlein & Silke Schoch & Kelsie Majercak & Laura Elisabeth Gressler & Ryan C. Costantino & T. Rosie Love & Eleanor M. Perfetto
275-285 Attitudes Toward the Adoption of Remote Patient Monitoring and Artificial Intelligence in Parkinson’s Disease Management: Perspectives of Patients and Neurologists
by Carlos Antonio Godoy Junior & Francesco Miele & Laura Mäkitie & Eleonora Fiorenzato & Maija Koivu & Lytske Jantien Bakker & Carin Uyl-de Groot & William Ken Redekop & Welmoed Kirsten Deen
287-300 Patients’ Preferences for Systemic Lupus Erythematosus Treatments—A Discrete Choice Experiment
by Hannah Collacott & Andrea Phillips-Beyer & Nicolas Krucien & Bruno Flamion & Kevin Marsh
301-317 Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm
by Nyantara Wickramasekera & Arne Risa Hole & Donna Rowen & Allan Wailoo & Anju D. Keetharuth
319-333 From Qualitative Research to Quantitative Preference Elicitation: An Example in Invasive Meningococcal Disease
by Joshua Coulter & Chiara Whichello & Sebastian Heidenreich & Brett Hauber & Christine Michaels-Igbokwe & Joseph C. Cappelleri & Paula Peyrani & Jessica Vespa Presa & Malavika Venkatraman & Katharina Schley

March 2024, Volume 17, Issue 2

January 2024, Volume 17, Issue 1

November 2023, Volume 16, Issue 6

569-578 Operationalizing the Chronic Care Model with Goal-Oriented Care
by Agnes Grudniewicz & Carolyn Steele Gray & Pauline Boeckxstaens & Jan Maeseneer & James Mold
579-591 Patient Preferences in Diagnostic Imaging: A Scoping Review
by Trey A. Baird & Davene R. Wright & Maria T. Britto & Ellen A. Lipstein & Andrew T. Trout & Shireen E. Hayatghaibi
593-606 Gauging Incentive Values and Expectations (G.I.V.E.) among Blood Donors for Nonmonetary Incentives: Developing a Preference Elicitation Instrument through Qualitative Approaches in Shandong, China
by Yu Wang & Peicong Zhai & Yue Zhang & Shan Jiang & Gang Chen & Shunping Li
607-623 Discrete-Choice Experiment to Understand the Preferences of Patients with Hormone-Sensitive Prostate Cancer in the USA, Canada, and the UK
by Juan Marcos Gonzalez & Arijit Ganguli & Alicia K. Morgans & Bertrand F. Tombal & Sebastien J. Hotte & Hiroyoshi Suzuki & Hemant Bhadauria & Mok Oh & Charles D. Scales Jr & Matthew J. Wallace & Jui-Chen Yang & Daniel J. George
625-640 A Qualitative Exploration of Patient and Staff Experiences of the Receipt and Delivery of Specialist Weight Management Services in the UK
by Ross Watkins & Dawn Swancutt & Mia Alexander & Shokraneh Moghadam & Steve Perry & Sarah Dean & Rod Sheaff & Jonathan Pinkney & Mark Tarrant & Jenny Lloyd
641-653 Maximum Acceptable Risk Estimation Based on a Discrete Choice Experiment and a Probabilistic Threshold Technique
by Jorien Veldwijk & Rachael Lynn DiSantostefano & Ellen Janssen & Gwenda Simons & Matthias Englbrecht & Karin Schölin Bywall & Christine Radawski & Karim Raza & Brett Hauber & Marie Falahee
655-666 Face Validity of Four Preference-Weighted Quality-of-Life Measures in Residential Aged Care: A Think-Aloud Study
by Lidia Engel & Leona Kosowicz & Ekaterina Bogatyreva & Frances Batchelor & Nancy Devlin & Briony Dow & Andrew S. Gilbert & Brendan Mulhern & Tessa Peasgood & Rosalie Viney

September 2023, Volume 16, Issue 5

July 2023, Volume 16, Issue 4

289-292 Comment on: Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments
by F. Reed Johnson
293-300 A Foundation for Patient-Centered Core Impact Sets: Key Learnings from Past and Existing Approaches
by Eleanor M. Perfetto & T. Rosie Love & Elisabeth M. Oehrlein & Silke C. Schoch & Suz Schrandt
301-315 Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments
by Jorien Veldwijk & Stella Maria Marceta & Joffre Dan Swait & Stefan Adriaan Lipman & Esther Wilhelmina Bekker-Grob
317-341 Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review
by Eva Pattyn & Paul Gemmel & Sophie Vandepitte & Jeroen Trybou
343-343 Correction to: Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review
by Eva Pattyn & Paul Gemmel & Sophie Vandepitte & Jeroen Trybou
345-357 Individual Differences in the Patient Experience of Relapsing Multiple Sclerosis (RMS): A Multi-Country Qualitative Exploration of Drivers of Treatment Preferences Among People Living with RMS
by Sophi Tatlock & Kate Sully & Anjali Batish & Chelsea Finbow & William Neill & Carol Lines & Roisin Brennan & Nicholas Adlard & Tamara Backhouse
359-369 Patient-Centered Clinical Trial Design for Heart Failure Devices via Bayesian Decision Analysis
by Shomesh E. Chaudhuri & Phillip Adamson & Dean Bruhn-Ding & Zied Ben Chaouch & David Gebben & Liliana Rincon-Gonzalez & Barry Liden & Shelby D. Reed & Anindita Saha & Daniel Schaber & Kenneth Stein & Michelle E. Tarver & Andrew W. Lo
371-383 Cancer Survivor Preferences for Models of Breast Cancer Follow-Up Care: Selecting Attributes for Inclusion in a Discrete Choice Experiment
by Sanjeewa Kularatna & Michelle Allen & Ruvini M. Hettiarachchi & Fiona Crawford-Williams & Sameera Senanayake & David Brain & Nicolas H. Hart & Bogda Koczwara & Carolyn Ee & Raymond J. Chan
385-398 Physical Activity Preferences of People Living with Brain Injury: Formative Qualitative Research to Develop a Discrete Choice Experiment
by Abby Haynes & Kirsten Howard & Liam Johnson & Gavin Williams & Kelly Clanchy & Sean Tweedy & Adam Scheinberg & Sakina Chagpar & Belinda Wang & Gabrielle Vassallo & Rhys Ashpole & Catherine Sherrington & Leanne Hassett

May 2023, Volume 16, Issue 3

179-181 The Pogo-ization of Post-Pandemic Vaccine Policy
by Peter J. Pitts
183-199 So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience
by Paul Wicks & Lindsey Wahlstrom-Edwards & Sam Fillingham & Andrea Downing & Elin Haf Davies
201-221 Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs)
by Tessa Peasgood & Julia M. Caruana & Clara Mukuria
223-237 The Impact of Video-Based Educational Materials with Voiceovers on Preferences for Glucose Monitoring Technology in Patients with Diabetes: A Randomised Study
by Ian P. Smith & Chiara L. Whichello & Esther W. Bekker-Grob & Maureen P. M. H. Rutten-van Mölken & Jorien Veldwijk & G. Ardine Wit
239-253 Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment
by Vikas Soekhai & Bas Donkers & Jennifer Viberg Johansson & Cecilia Jimenez-Moreno & Cathy Anne Pinto & G. Ardine Wit & Esther Bekker-Grob
255-264 Improving Outcome-Driven Care in Multiple Myeloma Using Patient-Reported Outcomes: A Qualitative Evaluation Study
by Christine Bennink & Marleen Mul & Marjolein Klift & Annemiek Broijl & Lidwine Tick & Eva Jongh & Mirjam Garvelink & Dorien Lobbezoo & Pieter Sonneveld & Jan Hazelzet
265-276 Focus Groups to Inform the Development of a Patient-Reported Outcome Measure (PROM) for Temporomandibular Joint Disorders (TMDs)
by Emily Elstad & Fraser D. Bocell & Tamika Cowans Owens & Dilani Logan & Emily Melluso & Claire Viscione & San Keller & Allen Chen & Jessica Weinberg & Veronica Sansing-Foster & Leah Royce & Phillip Woods & Andrew I. Steen & Adriana Ineveld & Michelle Reardon & Allen Cowley & John Kusiak & Deanne Clare & Terrie Cowley & Michelle E. Tarver
277-285 Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study
by Nicole Bouranis & Sherril Gelmon & Allison Lindauer
287-287 Correction to: How Does the Public Evaluate Vaccines for Low‑Incidence, Severe‑Outcome Diseases? A General‑Population Choice Experiment
by F. Reed Johnson & Angelyn Fairchild & Dale Whittington & Amit K. Srivastava & Juan Marcos Gonzalez & Liping Huang

March 2023, Volume 16, Issue 2

89-93 Rethinking Patient Engagement in Cancer Research
by Anne L. R. Schuster & Heather Hampel & Electra D. Paskett & John F. P. Bridges
95-103 Long-Term Improvement in the Patient-Reported Outcomes of Rectal Bleeding, Stool Frequency, and Health-Related Quality of Life with Tofacitinib in the Ulcerative Colitis OCTAVE Clinical Program
by David P. Hudesman & Joana Torres & Leonardo Salese & John C. Woolcott & Rajiv Mundayat & Chinyu Su & Mahmoud H. Mosli & Jessica R. Allegretti
105-116 Patient-Reported Outcomes for Fully Vaccinated COVID-19 Patients Over 6 Weeks: The Experiences of Clinical Breakthrough Cases
by Keri Vartanian & Daniel Fish & Benjamin Gronowski & Natalie Kenton & Ari Robicsek
117-125 The Perception of Women in Rural and Remote Scotland About Intrapartum Care: A Qualitative Study
by Verity Watson & Helen Bryers & Nicolas Krucien & Seda Erdem & Mary Burnside & Hugo C. Woerden
127-138 Patients’ Preferences for Connected Insulin Pens: A Discrete Choice Experiment Among Patients with Type 1 and Type 2 Diabetes
by Jaein Seo & Sebastian Heidenreich & Esraa Aldalooj & Jiat Ling Poon & Erik Spaepen & Elizabeth L. Eby & Rachel S. Newson
139-151 How Does the Public Evaluate Vaccines for Low-Incidence, Severe-Outcome Diseases? A General-Population Choice Experiment
by F. Reed Johnson & Angelyn Fairchild & Dale Whittington & Amit K. Srivastava & Juan Marcos Gonzalez & Liping Huang
153-164 Patient Preferences in the Management of Hidradenitis Suppurativa: Results of a Multinational Discrete Choice Experiment in Europe
by Damon Willems & Eva-Lotta Hinzpeter & Hessel H. Zee & Christopher J. Sayed & John R. Ingram & Charlotte Beaudart & Silvia M. A. A. Evers & Mickael Hiligsmann
165-177 Patient Preferences for Attributes that Characterise Alternative Models of Care in Gastroenterology: A Discrete Choice Experiment
by Rumbidzai N. Mutsekwa & Katrina L. Campbell & Russell Canavan & Brendan Mulhern & Rebecca L. Angus & Joshua M. Byrnes

January 2023, Volume 16, Issue 1

3-5 FDA Guidance on Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments: Old Wine in a New Bottle?
by Ari Gnanasakthy & Shanshan Qin & Lindsey Norcross
7-17 Improving Interpretation of Evidence Relating to Quality of Life in Health Technology Assessments of Rare Disease Treatments
by Elena Nicod & Andrew J Lloyd & Thomas Morel & Michela Meregaglia & Sheela Upadhyaya & Amanda Whittal & Karen Facey & Michael Drummond
19-29 Conducting Patient-Oriented Research in Low-Income and Middle-Income Countries: A Scoping Review
by Bukola Mary Ibitoye & Bernie Garrett & Manon Ranger & Jennifer Stinson
31-42 What Author Instructions Do Health Journals Provide for Writing Plain Language Summaries? A Scoping Review
by Karen M. Gainey & Jenna Smith & Kirsten J. McCaffery & Sharon Clifford & Danielle M. Muscat
43-56 Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests
by Heather Gelhorn & Melissa M. Ross & Anuraag R. Kansal & Eric T. Fung & Michael V. Seiden & Nicolas Krucien & Karen C. Chung
57-66 Preferences for Treatments for Major Depressive Disorder: Formative Qualitative Research Using the Patient Experience
by Susan dosReis & Laura M. Bozzi & Beverly Butler & Richard Z. Xie & Richard H. Chapman & Jennifer Bright & Erica Malik & Julia F. Slejko
67-76 Constructing Health State Descriptions for Low-Risk Thyroid Cancer: Stakeholder Engagement and Formative Qualitative Research
by Erin G. Roth & Justin Kim & Julia F. Slejko & C. Daniel Mullins & Jennifer L. Doyle & David L. Levitt & Miguel Melendez & Kyle J. Fletke & Yinin Hu
77-88 Student-Athlete Preferences for Sexual Violence Reporting: A Discrete Choice Experiment
by Alice M. Ellyson & Avanti Adhia & Emily Kroshus & Davene R. Wright

November 2022, Volume 15, Issue 6

September 2022, Volume 15, Issue 5

509-512 Towards Accurate Prediction of Healthcare Choices: The INTERSOCIAL Project
by Esther W. Bekker-Grob & Bas Donkers & Michiel Bliemer & Joanna Coast & Joffre Swait
513-520 Improvements to Survey Design from Pilot Testing a Discrete-Choice Experiment of the Preferences of Persons Living with HIV for Long-Acting Antiretroviral Therapies
by Douglas Barthold & Aaron T. Brah & Susan M. Graham & Jane M. Simoni & Brett Hauber
521-535 Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain
by Anabel Estévez-Carrillo & Sarah Dewilde & Mark Oppe & Juan M. Ramos-Goñi
537-550 Factors That Patients Consider in Their Choice of Non-Surgical Management for Hip and Knee Osteoarthritis: Formative Qualitative Research for a Discrete Choice Experiment
by Bryanne L. Kennedy & Gillian R. Currie & Ania Kania-Richmond & Carolyn A. Emery & Gail MacKean & Deborah A. Marshall
551-564 The Patient Voice: Exploring Treatment Preferences in Participants with Mild Cognitive Concerns to Inform Regulatory Decision Making
by Carol Mansfield & Kristin Bullok & Jillian Venci Fuhs & Antje Tockhorn-Heidenreich & J. Scott Andrews & Dana DiBenedetti & Brandy R. Matthews & Joshua C. Darling & Jessie Sutphin & Brett Hauber
565-576 Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID
by Sarah Ziegler & Alessia Raineri & Vasileios Nittas & Natalie Rangelov & Fabian Vollrath & Chantal Britt & Milo A. Puhan
577-588 A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy
by Norah L. Crossnohere & Ryan Fischer & Elizabeth Vroom & Patricia Furlong & John F. P. Bridges
589-598 Determinants of Health Preferences Using Data from the Egyptian EQ-5D-5L Valuation Study
by Sahar Al Shabasy & Fatima Al Sayah & Maggie Abbassi & Samar Farid
599-609 Perspectives of Pediatric Rheumatologists on Initiating and Tapering Biologics in Patients with Juvenile Idiopathic Arthritis: A Formative Qualitative Study
by Gillian R. Currie & Tram Pham & Marinka Twilt & Maarten J. IJzerman & Pauline M. Hull & Michelle M. A. Kip & Susanne M. Benseler & Glen S. Hazlewood & Rae S. M. Yeung & Nico M. Wulffraat & Joost F. Swart & Sebastian J. Vastert & Deborah A. Marshall

July 2022, Volume 15, Issue 4

383-387 Patient-Reported Chronic Pain Intensity: More Than Meets the Eye
by Dale J. Langford & Jennifer S. Gewandter & Dagmar Amtmann & Bryce B. Reeve & Sharon Hertz & John D. Loeser & Christin Veasley & Dennis C. Turk & Robert H. Dworkin
389-397 Time to See the Difference: Video Capture for Patient-Centered Clinical Trials
by Elin Haf Davies & Clare Matthews & Adeline Merlet & Martine Zimmermann
399-421 What is the Most Valid and Reliable Compassion Measure in Healthcare? An Updated Comprehensive and Critical Review
by Shane Sinclair & Jane Kondejewski & Thomas F. Hack & Harrison C. D. Boss & Cara C. MacInnis
423-434 The Application of Preference Elicitation Methods in Clinical Trial Design to Quantify Trade-Offs: A Scoping Review
by Megan Thomas & Deborah A. Marshall & Daksh Choudhary & Susan J. Bartlett & Adalberto Loyola Sanchez & Glen S. Hazlewood
435-444 Patient-Reported Outcome Measures Used for Assessing Breast Sensation after Mastectomy: Not Fit for Purpose
by Hansje P. Smeele & Rachel C. H. Dijkstra & Merel L. Kimman & René R. W. J. Hulst & Stefania M. H. Tuinder